Huff n Puff Online Forum
What is IPF?
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The Purpose of this site
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Idiopathic Pulmonary Fibrosis, Farmers lung, Interstitial Pneumonitis, Stiff Lung Disease, Honeycomb Lung, Hammond-Rich, Cryptogenic Fibrosing Alveolitis, and many many others
I do not present the following as unquestionable data. In fact from what I have been able to ascertain, there is no unquestionable information other than this is a serious terminal illness. If you have been recently diagnosed with any of the interstitial lung diseases you will find very little in the way of explanations for causes and treatment. However, there are some! I will provide you with as many links as possible to what information there is and let you decide as to whether or not you wish to become more knowledgeable of it.
The information supplied here comes in majority from the internet via research centres, forums and home pages like this one. Some of what is here is verbatim while the rest is my interpretation of what I have either read or been told. I caution you to apply the same degree of accuracy to not only this but all pages on the internet dealing with any topic. Do not accept what is written as being above reproach and undeniably correct and accurate. You can, I believe, put more stock in what is submitted by professional establishments such as hospitals etc. than you can from any personal home page.
I do not believe that anyone would intentionally mislead, especially not with respect to the type of content contained at this site. However, misinterpretation and misunderstanding can often promote inaccuracies either in what is written or what is perceived to have been written. It is very difficult, when one is convinced that his or her interpretation is the correct one, to put forth a collection of ideas and opinions in such a manner as not to lean heavily in favour of the authors views on the subject. Hopefully this and other sites will serve to enable us to unite in a concerted effort to do what we can to defeat this deadly enemy through an exchange of information and better understanding, or at the very least smooth our path as we wander aimlessly along the IPF highway.
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