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Support for people with interstitial lung disease
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 Topic: John
Mrs. W

Replies: 3
Views: 1403

PostForum: General Discussion   Posted: Mon Dec 15, 2014 11:59 am   Subject: John
This is a 37 sec. video of John a year before Hospice at a family party at our home. I thought those of you who remember us might enjoy this. John lived 5 years after left lung transplant. Hope you al ...
 Topic: Hello
Mrs. W

Replies: 4
Views: 1501

PostForum: General Discussion   Posted: Sat Dec 06, 2014 4:37 pm   Subject: Hi
Ernie, LoriB and Joanie

Miss all of you too. I remember finding this site and all the new friends that I made, you were each a blessing to me. Ernie, I'm so sad to hear this news and hope the effec ...
 Topic: Hello
Mrs. W

Replies: 4
Views: 1501

PostForum: General Discussion   Posted: Mon Dec 01, 2014 12:17 am   Subject: Hello
Lori B. sent me a note, so wonderful to hear from her...got me to thinking about everyone here.
Hope you are all well, will be praying for you tonight.

God bless,
Pam
 Topic: Upddate
Mrs. W

Replies: 4
Views: 1544

PostForum: General Discussion   Posted: Mon Jun 02, 2014 10:18 am   Subject: Upddate
Just wanted to give an update about my life for all of those who remember my time here. As you know John went to His Lord on Feb. 21, 2013. Five years after his lung transplant he went into chronic re ...
 Topic: Welcome to Huff n Puff... New Members Please Read
Mrs. W

Replies: 5
Views: 10147

PostForum: General Discussion   Posted: Mon Jun 02, 2014 9:45 am   Subject: Diagnosis
I just reread my Welcome post at the top of this thread, I used to be a monitor, anyway, I was not diagnosed, my husband was. Just wanted to clear that up.
God Bless you,
Pam
 Topic: Checking in
Mrs. W

Replies: 19
Views: 3327

PostForum: General Discussion   Posted: Sat Feb 15, 2014 4:07 pm   Subject: Mark
So happy to hear. They will get the bleeding under control, and you'll have a happy life breathing.
I'm praying for you.

Love,
Pam <><
 Topic: Brething relief
Mrs. W

Replies: 4
Views: 1030

PostForum: General Discussion   Posted: Wed Feb 05, 2014 5:09 pm   Subject: Brething relief
I have something to say that I was really angry about...

Pre Transplant John was coughing, choking to death until transplant. Post Transplant, years later in total rejection he was doing the same t ...
 Topic: Checking in
Mrs. W

Replies: 19
Views: 3327

PostForum: General Discussion   Posted: Wed Feb 05, 2014 4:58 pm   Subject: Transplant issues
Hi Brenda
When you do factor in the things that can go wrong you have to remember what is going wrong already. From the known (can't breathe, no cure) to the unknown which can have the same end resul ...
 Topic: Checking in
Mrs. W

Replies: 19
Views: 3327

PostForum: General Discussion   Posted: Sat Jan 25, 2014 1:33 am   Subject: Transplant
After John's transplant he was moved from ICU to his room. I kept wanting to put o2 on him, even just a little bit...the doctor said, "Why, he is breathing now."

He had 8 years of "b ...
 Topic: Advocate
Mrs. W

Replies: 3
Views: 2603

PostForum: Caregivers   Posted: Fri Jan 24, 2014 6:04 pm   Subject: Notes
I'm glad it help you...I'm sure you are doing a wonderful job with your, "love file".

God is good, all the time.

Such a good caregiver you are.

Love,

Pam
 Topic: Checking in
Mrs. W

Replies: 19
Views: 3327

PostForum: General Discussion   Posted: Fri Jan 24, 2014 5:48 pm   Subject: Encouragement
I'm glad you feel that way Joan, En-courage-ment. Joshua 1:9 is my special scripture through the years of John's lung disease. "Do not fear..." Good promises to remember.

My hope in life ...
 Topic: Checking in
Mrs. W

Replies: 19
Views: 3327

PostForum: General Discussion   Posted: Thu Jan 23, 2014 2:16 pm   Subject: How I'm doing
I'm doing well, still in the same house, living life with my 2 dogs. We are in a "Polar Vortex" in Wi, which is fun...not. My pipes froze once but I got them running again. The Lord takes go ...
 Topic: Trust...
Mrs. W

Replies: 0
Views: 3248

PostForum: Words of Comfort   Posted: Wed Jan 22, 2014 10:04 pm   Subject: Trust...
In Proverbs God says, "Trust in the Lord with all your heart and lean not on your own understanding. In all your ways acknowledge Him and He will direct your paths."

Blessings,
Pam
 Topic: Advocate
Mrs. W

Replies: 3
Views: 2603

PostForum: Caregivers   Posted: Wed Jan 22, 2014 9:59 pm   Subject: Advocate
A nurse told me in the early stages of John's disease that, "I am his best advocate."

When the doctors and nurses go home to their families, we are still there with ours and the disease. ...
 Topic: Checking in
Mrs. W

Replies: 19
Views: 3327

PostForum: General Discussion   Posted: Wed Jan 22, 2014 9:52 pm   Subject: Checking in
Well into the new year now, I hope you are all well and I'm praying for a cure as much as ever before.
Much love,
Pam
 

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